You Can Help Change Eidens Future.
Eiden is 7 and is known as the “one in a billion boy” as he has Galactosyltransferase 1 deficiency and Spondylody Spastic Ehlers Danlos Syndrome. This is an extremely rare genetic condition effecting only 7 people in the world. Sadly this is a life limiting disorder which affects the way each of the cells in his body are structured. Eiden also has a cleft palette, numerous dismorphic features and his bones are so fragile they could crumble if he is hugged. His condition means he is the size of an 18 month old toddler.
We are fundraiaing to build a summer house to be used as a lovely quite sensory room for Eiden as his bedroom only has enough room for his essential medical equipment.